Tuesday, December 11, 2012

Crawling and a Liver Biopsy

Jackson started crawling.  Last night we saw him for the first time moving forward.  It is so cute.  I guess now we really need to be more careful about where he is playing.  I have left him on the floor in his room while I was getting his bath ready but no more!  He could crawl into the hall and fall down the steps.  It is awesome to see how proud he is.

I was finally able to get a hold of the GI doctor's office today.  Their office phone has been messed up for two days.  It is annoying when they call and leave a message to call back.  I have determined this is not a good thing.  If the results were negative they would either A, not call, or B, say the results were good.  When they don't say anything I have learned its because they want to review some bad results with you. 

My ultrasound shows a fatty liver but apparently that's not too big of a deal and it is very common for the San Antonio area.  Guess we eat too much Mexican food.  The concerning results are with the blood work (duh).  I have a positive ASMA and positive autoimmune globulin...whatever those mean.  What it means for me is a liver biopsy on Tuesday, 18 December.  No anti-inflammatory meds between now and then.  I have to be there at 0700 and my appointment is at 1000.  They say it takes about 20 minutes and I will be awake while they stick a needle into my liver.  The really crappy part is the recovery which takes 4-5 hours before I can go home.

SO next week I have a follow up with the cardiologist, liver biopsy, eye screening for the plaquenil (lupus med) and Jackson's (hopefully) last helmet appointment.  And too think I was going to call the dermatologist for an appointment for my hair/scalp and the dentist since a tooth is bothering me... when do I have time?

Johns Hopkins Lupus Center also contacted me yesterday to get a new patient packet completed, which I did.  They also said they still needed my files from the Rheumatologist.  So I spent a good portion of my day tracking the files down, which were sent to JH Lupus Center on 28 November.  They haven't responded so I am hoping they found them.  I have to get copies of all of my records from each doctor to send as well.  That's going to take some time, which is getting tighter and tighter...

Oh, and I have to plan our move back to Baltimore and find a house to live in, a daycare for Jackson, and tons of new doctors...

How can this week be so awesome (Jackson) and so horrible (everything else)?

Today's Blessing:  Video cameras.  Being able to catch all of the awesome on film to watch over and over is wonderful.

2 comments:

  1. We have to stay positive Steph. I know it's extremely hard when all you seem to get is bad news but hopefully things will be getting better very soon. You have a ton of us that are willing to help make your move back home as easy as possible. Please do not hesitate to ask any of us for ANYTHING. I love you and am proud that I have such a very strong sister. You are a great role model for Jackson, the future kids of this family, and myself.

    I love you,
    Rob

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  2. Robs message speaks volumns! We are all ready to help at any time! I am so proud of you for being so strong. Do not be afraid to ask for help. So many are willing. Lots of love and prayers coming your way!

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