Crawling and a Liver Biopsy

Jackson started crawling.  Last night we saw him for the first time moving forward.  It is so cute.  I guess now we really need to be more careful about where he is playing.  I have left him on the floor in his room while I was getting his bath ready but no more!  He could crawl into the hall and fall down the steps.  It is awesome to see how proud he is.

I was finally able to get a hold of the GI doctor's office today.  Their office phone has been messed up for two days.  It is annoying when they call and leave a message to call back.  I have determined this is not a good thing.  If the results were negative they would either A, not call, or B, say the results were good.  When they don't say anything I have learned its because they want to review some bad results with you. 

My ultrasound shows a fatty liver but apparently that's not too big of a deal and it is very common for the San Antonio area.  Guess we eat too much Mexican food.  The concerning results are with the blood work (duh).  I have a positive ASMA and positive autoimmune globulin...whatever those mean.  What it means for me is a liver biopsy on Tuesday, 18 December.  No anti-inflammatory meds between now and then.  I have to be there at 0700 and my appointment is at 1000.  They say it takes about 20 minutes and I will be awake while they stick a needle into my liver.  The really crappy part is the recovery which takes 4-5 hours before I can go home.

SO next week I have a follow up with the cardiologist, liver biopsy, eye screening for the plaquenil (lupus med) and Jackson's (hopefully) last helmet appointment.  And too think I was going to call the dermatologist for an appointment for my hair/scalp and the dentist since a tooth is bothering me... when do I have time?

Johns Hopkins Lupus Center also contacted me yesterday to get a new patient packet completed, which I did.  They also said they still needed my files from the Rheumatologist.  So I spent a good portion of my day tracking the files down, which were sent to JH Lupus Center on 28 November.  They haven't responded so I am hoping they found them.  I have to get copies of all of my records from each doctor to send as well.  That's going to take some time, which is getting tighter and tighter...

Oh, and I have to plan our move back to Baltimore and find a house to live in, a daycare for Jackson, and tons of new doctors...

How can this week be so awesome (Jackson) and so horrible (everything else)?

Today's Blessing:  Video cameras.  Being able to catch all of the awesome on film to watch over and over is wonderful.

Jury Duty, ugh

I received another jury duty summons yesterday in the mail.  I got a summons in October right in the middle of my first Lupus flare.  I was able to get out of it then due to illness but I didn't think I would get another so soon.  I do not normally think jury duty is a bad thing.  In fact, I would like to do it at some point.  However, right now I do not think its a good idea.  I am still trying to get used to my new meds and I am trying to see how I am affected by light.  I am going to ask for an exception.  If I can get them to excuse me until we move back to Maryland that would be great.

As for moving, there is a lot of planning involved so I am going to be pretty busy these next few months.  On the 27th I am meeting with my Rheumy and then I should know what date works for the move.  Hoping to get transferred to Johns Hopkins Lupus Center.  I want to make sure we move in between appointments and I do not want to have to wait to meet my new doctor for too long.  So not only will I be doing normal things like finding daycare, a pediatrician, family doctor and dentist, but I will also have to find a dermatologist, optamologist, rheumatologist, and I'm sure others.

Weekend plans include outlet shopping and yoga followed by Ravens football.  So ready for some relaxing with my family and friends.