Saturday, June 28, 2014

Living with Lupus and a toddler

Boy its tough!  Recently we switched my 2 year old son into a toddler bed (actually his crib but with a safety rail on the front so he can come and go as he pleases).  It is the same bed but the new found freedom seems to be too tempting for the little guy.  Up and down, in and out, we play this game many times each night before he actually stays in bed.  Then in the middle of the night he is out of bed and sneaking into our room a few times and finally around  430 or 5am, he has decided he has had enough sleep and comes in to wake us up.  I am hoping this is another phase that will wear off shortly.  In fact, the last few nights has been pretty good with him going straight to sleep.  However, I have been woken in the middle of the night and then bright and early each morning.  Doesn't he know we should sleep in on the weekends!?  So, how does having Lupus make this any different?  I am sure it doesn't.  My husband seems equally if not more frustrated each night and in the mornings I am usually the first one out of bed with the kiddo.  So, does having Lupus change anything?  Yes it does.  It isn't about comparing my reaction to this lack of sleep to my husbands.  He always needed more sleep than I did anyway.  I think the true gage would be to compare myself to myself prior to Lupus (if I can remember that self).  I think personally this lack of sleep is affecting me more because of the Lupus.  I would like to imagine that without the Lupus I would happily (okay, maybe that's asking too much) walk him back into bed as many times as needed and I would never loose my cool.  I would jump out of bed each time he wakes in the middle of the night and sooth him without cursing the early hours.  And when he comes into the bedroom around 5am and my alarm is set to go off at 510am, I wouldn't get mad and it wouldn't disrupt my entire morning. No, without Lupus I would be a better, more caring, understanding mother.  Lupus has made sleep so much more valuable.  HOWEVER, I could be wrong (and I hope to God I am).  I don't remember being a mother without having Lupus so I hope others can let me know that this is just a parent thing/mother thing and not a Lupus thing.  Other parents are just as sick and tired of their toddlers nighttime games as I am.  And yet look at me.  As I type this he is napping because that's the only time I get to blog.  I should be napping...

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