It ha been a long time. Apparently I only enjoy sharing my journey with Lupus when something bad is happening to me. Since it's been so long since I've felt really crappy I haven't felt the need to share and that isn't right. People need to know that there are good days, even great days! Days when you forget you have Lupus. I went to the beach and for more than a quick ten minute "I saw the water" and I'm out of there! We spent hours playing in the sand, touching the water with our toes and napping all under the protection of a bunch of umbrellas, hats, and lots of sunblock! For Jackson, it was his first trip to the beach. For me, it was my first trip to the beach with Lupus. Although I will say it was not incredibly awesome wearing so much protective wear I didn't feel too out of place. No one that I noticed was staring at me or acting like it was odd that I wasn't sporting a bathing suit like everyone else. I think the push nationally for SPF is helping. They are making some very cute SPF clothing and everyone is well aware of the risks of the sun! My family helped a lot too! Always reminding me to move my chair so I stayed in the shade or asking if I needed more sunblock. I am grateful for the vacation to feel normal. I am so proud to say I didn't get the slightest bit of sunburn. I came home the way I left, no aches and pains. Getting enough sleep on the other hand was a challenge! Jackson is 16 months and in the 98th percentile for height and weight. So need less to say he did not want to sleep in his pack n play. We alternated from the floor to the futon to the bed and no one slept well in his room since he snores and breathe loudly all night! So, its back to work and daycare. Back to waiting for the next big thing! We do not have another vacation planned yet but I am excited thinking about all the places I want to take Jackson that for a long time I didn't think I was going to be able to.
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Jackson and I enjoying the beach for the 1st time!
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If you have time, please check out this link to see my team in the Walk to End Lupus Now Maryland walk which is in 40 days! I would love to have you on my team or as a supporter. Lupus is a horrible disease that hurts so many people. I am blessed with a wonderful support system and the best doctors in the country. I know times are rough for everyone but if you can afford $5, $10, $15 please consider a small donation to my cause. I will not stop asking until we find a cure. I appreciate everything you have done, are doing right now, and will do in the future to support my family and myself in this crazy journey.
http://lupusdmv.kintera.org/faf/search/searchTeamPart.asp?ievent=1072113&lis=0&kntae1072113=F6592DC0DFB442169501F5E3EA263764&supId=0&team=5526234&cj=Y
